Romina Khurshid Alam, the Coordinator to the Prime Minister of Pakistan on Climate Change at the Pakistan Pavilion at the COP29 Venue in Baku. Credit: Umar Manzoor Shah/IPS
BAKU, Nov 19 2024 (IPS) – Romina Khurshid Alam, the Coordinator to the Prime Minister of Pakistan on Climate Change, praised the resilience of the people of her country in the face of climate disasters and has put her faith into diplomacy to achieve climate justice.
Speaking to IPS against the backdrop of a rising environmental crisis and unfulfilled promises by developed nations, Alam outlined the necessity of climate diplomacy as a tool to bridge global disparities and address the collective challenges posed by climate change.
Climate Diplomacy: A Global Imperative
Alam said that climate diplomacy is of utmost importance in a world where disasters transcend borders.
“Climate diplomacy is crucial because the challenges we face today are not confined to one nation,” she said. “Smog, floods, and melting glaciers do not ask for permission to cross boundaries. Even the largest wars have been resolved through dialogue, and we must adopt the same approach for climate issues.”
Recalling the devastating floods in Pakistan in 2022, Alam said the human and economic toll the country has faced was massive. Vulnerable nations like Pakistan, she argued, are bearing the brunt of a crisis they did little to create.
“We are paying the price for a problem caused by others. Despite our minimal contributions to global emissions, we are expected to ‘do more’ while developed countries delay fulfilling their commitments.”
A flooded village in Matiari, in the Sindh province of Pakistan. Credit: UNICEF/Asad Zaidi
Unkept Promises and the Loss and Damage Fund
Alam expressed frustration with the slow progress of the Loss and Damage Fund, a financial mechanism agreed to in previous COPs to support vulnerable nations.
“What happened to those pledges? Where is the funding? Promises are made at every COP, but they rarely materialize into action,” she said, while urging developed nations to stop making new commitments until they have fulfilled their existing ones and also stressing that accountability and transparency are essential.
Alam also criticized the lack of accessibility to promised funds for developing nations.
“It’s not just about pledging money—it’s about ensuring those funds reach the countries that need them. Mechanisms must be simplified so that nations like Pakistan can access what is rightfully theirs.”
Education and Climate Justice
During the interview, Alam drew attention to the intersection of climate change and education.
Alam called for climate justice that includes the protection of basic human rights, such as education, for the next generation.
She also pointed to the reluctance of neighboring countries to engage in meaningful discussions on shared challenges. “Regional solutions are imperative. Disasters don’t respect political or geographical boundaries, and neither should our response to them.”
International Climate Justice Court
Alam also shared her vision of an International Climate Justice Court, where vulnerable nations can hold major polluters accountable.
“I have requested the establishment of an International Climate Justice Court to protect the rights of those most affected by climate change,” she said. “Pakistan has already taken the lead by engaging national and international judges in this effort. Justice Mansoor Ali Shah has been instrumental in highlighting the need for such a court.”
According to Alam, this court could empower vulnerable nations to seek redress and enforce accountability, especially for unfulfilled commitments by developed countries.
“Why should children in Pakistan or other vulnerable nations suffer because of decisions made elsewhere? It’s time we demand answers.”
Human Rights and Climate Change
For Alam, the climate crisis is not just an environmental issue but also a severe human rights violation.
“Developed nations often champion human rights, but they fail to recognize the rights being violated in vulnerable countries due to climate change,” she said. “The loss of lives, homes, and livelihoods in countries like Pakistan is a direct result of inaction by wealthier nations.”
She called on the international community to view the climate crisis through a humanitarian lens. “This is about humanity. The sun shines on all, and disasters strike indiscriminately. We must come together, regardless of our differences, to address this shared challenge.”
Pakistan’s Role as a Climate Advocate
Alam praised the resilience of the Pakistani people, particularly in the aftermath of the 2022 floods.
“Our people have shown incredible strength,” she said. “Even the poorest woman who loses her roof to a flood will rebuild her life with courage. This resilience is what keeps us moving forward.”
She also highlighted Pakistan’s leadership in raising the voices of vulnerable nations. “Pakistan doesn’t just speak for itself; we speak for all developing countries that are facing the consequences of climate change. Peace and cooperation are essential, and Pakistan will continue to advocate for both.”
Saad Abdulla Al-Hitmi, Director of the Climate Change Department at the Government of Qatar. Credit: Umar Manzoor Shah/IPS
BAKU, Nov 19 2024 (IPS) – As global leaders gather at COP29 to address the urgent challenges posed by climate change, Saad Abdulla Al-Hitmi, Director of the Climate Change Department at the Government of Qatar, highlighted the nation’s ambitious goals in an interview with IPS, stressing its commitment to balancing environmental stewardship with economic growth.
Qatar’s Vision for Climate Action
Qatar’s participation at COP29, Al-Hitmi says, aligns with its National Vision 2030 and the National Environment and Climate Change Strategy 2021.
“Our message is clear: we aim to contribute to meaningful changes that reduce the impact of climate change while preserving the environment and its resources,” Al-Hitmi stated. This, according to him, is Qatar’s commitment to sustainability, focusing on achieving its nationally determined contributions (NDCs) by 2030 to protect and enhance environmental quality.
Key among Qatar’s goals, he says, is a 25 percent reduction in greenhouse gas emissions by 2030 compared to 2019 levels.
“We are implementing practical solutions and proven technological applications across all sectors to achieve this target,” Al-Hitmi said.
Adapting and Financing for the Future
According to Al-Hitmi, adaptation financing must complement mitigation efforts to ensure vulnerable countries can effectively address the impacts of climate change.
“We are working to balance adaptation and mitigation financing during climate negotiations,” he said. “Adaptation is vital for developing countries, and we are negotiating to secure gains that will fund critical adaptation projects.”
‘A Leading Voice in Climate Diplomacy’
Al-Hitmi said that by leveraging cutting-edge technology and championing equitable financing mechanisms, the nation seeks to inspire collective action on the global stage.
“Our participation at COP29 is about collaboration,” Al-Hitmi said. “It’s about ensuring that our shared planet is preserved for future generations.”
Dr. Amina Schartup, Marine Chemist, sharing insights on mercury pollution and its global impact at COP29, Ocean Pavilion, Baku, Azerbaijan. Credit: Aishwarya Bajpai/IPS
BAKU, Nov 19 2024 (IPS) – Mercury pollution from burning coal is contaminating our oceans and seafood, threatening global health.
Dr. Amina Schartup, a marine chemist at the Scripps Institution of Oceanography, has spent nearly 20 years studying the mercury cycle. Her research sheds light on how this heavy metal, released through industrial activities like coal burning, affects ecosystems and people worldwide.
“Mercury is released into the environment through various industries, with coal burning being a major source,” she explains. The problem goes beyond carbon dioxide (CO2) emissions, as mercury travels globally, settling in places as remote as the Arctic and high mountains.
When mercury reaches the oceans, it is transformed by microbes into methylmercury, a highly toxic form. “This form accumulates in seafood, especially in larger predatory fish like tuna and swordfish, which many humans consume,” Schartup says. This poses serious health risks, including developmental issues in children and cardiovascular problems in adults.
How Widespread Is Mercury Exposure?
Fish consumption is the primary way mercury enters the human body. According to Schartup, “If 3 billion people rely on seafood, then 3 billion people are exposed to mercury through fish.”
The health impacts, however, are complex.
“Fish consumption is generally healthy, supporting brain development, but consuming too much fish with high mercury levels can offset those benefits,” she notes. This makes balancing seafood consumption tricky, especially for communities heavily dependent on it.
Mercury exposure is a chronic issue, with small amounts accumulating in the body over time. The toxic effects, especially on fetal development, can result in reduced IQ and other developmental problems.
Mercury and Climate Change: A Dangerous Mix
Climate change intensifies mercury’s impact on oceans and seafood. Schartup explains, “The mercury cycle is connected to the environment, so any changes—like rising temperatures or melting sea ice—will affect it.”
For instance, warming oceans change the behavior of fish and microbes. “Warmer waters can cause fish to eat more, which increases their mercury levels,” she says. Melting sea ice, which acts as a cap on the ocean, alters mercury exchange between the air and water. Freshwater inputs from melting glaciers or rivers also bring more mercury into the oceans.
These factors combine to make mercury levels in seafood even more unpredictable, creating additional challenges for public health.
Global Pollution, Local Consequences
One of the most alarming aspects of mercury pollution is its global reach. Once released into the atmosphere, mercury can travel thousands of miles before settling. “It can deposit in pristine areas like the Arctic, far from the emission sources,” Schartup explains.
Microbial activity in different environments determines where mercury is transformed into its toxic form. “It happens everywhere,” she says, emphasizing that no region is immune to this problem.
What Needs to Change?
At COP29, Schartup is advocating for a broader understanding of how emissions impact the environment and human health. “Climate change isn’t just about CO2. Burning coal also releases mercury, which contaminates fish and affects the health of millions,” she says.
Reducing coal usage could address both carbon and mercury pollution.
“By solving the CO2 crisis, we can tackle mercury contamination as well. This isn’t just about climate; it’s about health too,” she stresses.
Schartup believes this issue should resonate with everyone, especially those who eat fish regularly. “Turning on the light switch is linked to mercury in the fish we eat. It’s all connected,” she explains.
Protecting Vulnerable Communities
Some populations are more affected than others, particularly those relying heavily on seafood. These communities face a double burden: the health risks from mercury and the challenges of adapting to climate change.
Schartup emphasizes the need for policies to protect these vulnerable groups. Reducing coal emissions and investing in cleaner energy sources could lessen mercury pollution and its far-reaching effects.
A Call to Action
Mercury pollution is a hidden crisis, but its effects on human health and the environment are profound. Schartup’s research underscores the urgency of addressing this issue as part of global climate action.
“We have a chance to solve multiple problems at once,” she says. Reducing coal emissions won’t just cut CO2; it will also protect our oceans, seafood, and health.
This interconnected approach, she believes, is key to creating a sustainable future for all.
Chronic pain affects approximately 35% of older adults and is a leading cause of disability, but rates of pain double to 60–75% for older adults in underserved communities.1–8 Quantitative studies have demonstrated that chronic pain interferes with work, social relationships, and activities of daily living.1,9 Chronic pain also markedly impacts psychological functioning, with high rates of depression and anxiety, which can in turn cyclically exacerbate pain intensity and interference.10 Healthcare staff often have difficulty fully addressing the needs of patients with chronic pain, especially in under-resourced community clinics, where many underserved and historically marginalized patients receive their care.11 Considering the perspectives of medical staff and older adult patients with chronic pain is crucial for developing treatments that fully meet the needs of patients in the context of the limited resources of community clinics.
There has been a recent push to understand how contextual factors intersect to impact health conditions, such as chronic pain, especially for individuals from underserved communities whose health is often affected by communal and structural factors outside of their immediate control.12 In particular, the socioecological model (SEM) provides a framework through which to comprehensively view the interplay of factors that impact and are impacted by pain at four levels of analysis: individual, interpersonal, community, and societal.13–15 Individual factors include the cognitive, affective, and behavioral experience of chronic pain, including interference of pain in work, social, and emotional functioning. Interpersonal factors represent those between two individuals or within a single family (eg, relationship satisfaction, relationships with healthcare providers), while community factors include the social (eg, culture, religion) and physical (eg, city transportation) context that the individual lives in. The structural level describes broader societal factors (eg, discrimination, healthcare policy), which dictate an individual’s place in society and the resources they have access to. The SEM is thus a helpful tool for organizing our understanding of a population that moves beyond focusing solely on the individual. While our interventions are mostly centered on addressing individual factors, previous research suggests all four levels may be relevant for the experience of chronic pain. For example, at the individual level, some older adults display an acceptance of their pain experience and understanding that pain is sometimes a normal part of aging,16–18 while others experience increased depression and anxiety.10 These individual factors can be viewed in the context of interpersonal factors, including the dynamics of a family unit and the availability of social support.19 These in turn interact with broader cultural/community factors, such as language and ethnic cultural background, while societal factors (eg, discrimination) often exert stress on individuals that can exacerbate chronic pain.20
While quantitative findings have enabled a general evaluation of the contributors to and effects of pain, qualitative methods are particularly useful for elucidating the contextual factors highlighted in the socioecological model. Qualitative methods can help to expound not just individuals’ quantitative ratings of pain interference but also the detailed ways in which pain interferes in their lives, as well as the contribution of interpersonal relationships to their pain, including relationships with medical staff. In explaining the specific ways in which pain interferes in their lives, older adults express particular frustration with their loss of ability to perform activities of daily living and subsequent feelings of uselessness due to pain and age.16,21 This disrupted sense of self is paired with a sense of disconnect from others, and older adults report large impacts of pain on their relationships,22 including those with medical staff.17,23,24 Meanwhile, medical staff report understanding the difficulty of living with chronic pain25 while experiencing frustration with patients’ lack of willingness to acknowledge psychosocial contributors to pain.26 All told, patients often experience chronic pain as a disabling condition that takes away their sense of who they once were, while medical staff feel the burden of educating and connecting with patients whose needs they cannot always meet. However, much of this existing research was conducted with higher-SES populations, and there is an absence of qualitative information regarding the communal and societal contributors to pain from the patient and staff perspective.
These existing qualitative analyses of chronic pain in older adults provide a foundation of information about the individual perspectives of medical staff and patients with chronic pain. An unmet need remains using qualitative methods to synthesize these perspectives in the context of the larger communal, cultural, and societal influences on chronic pain.27,28 Further, given that most behavioral pain treatments were developed with higher SES populations in ethnically homogeneous trials,29 it is especially important to consider these broader levels of analysis when seeking to understand the factors that interact with chronic pain for older adult patients in underserved settings. In these populations, aging is accelerated by a range of life factors, including increased financial stress,30 and pain outcomes can be worse due to stressors, including class and ethnicity-based discrimination.31,32 While the socioecological model has been used to examine the experience of a range of health conditions and behaviors,33–35 it has yet to be used as a framework for the qualitative assessment of chronic pain for older adults in underserved communities. Such an analysis is essential for understanding the factors that impact and are impacted by chronic pain, including points of intervention across all socioecological levels of analysis. By understanding the comprehensive factors affecting the pain experience, we can better implement evidence-based pain management interventions in the community.
The present study aimed to elucidate individual, interpersonal, community, and societal factors associated with chronic pain from the perception of older adult patients and medical staff from a community health clinic, using qualitative analyses grounded in the socioecological model. Our primary research question centered on understanding the multi-layered factors influencing the pain experience in this clinic to inform future treatment development and implementation. We used thematic analysis to create a descriptive narrative of the experience of this patient population. This analysis will help to bridge the gap between patients and medical staff by identifying the commonalities and discrepancies between patient and staff perceptions of the factors that impact and are impacted by chronic pain for older adults in a community primary care setting. We also aim to broaden our understanding of the contextual circumstances that are often ignored in biomedically focused treatment planning.
Materials and Methods
Study Overview
We conducted 4 focus groups and 2 individual interviews with medical staff (n=25) and 3 focus groups and 7 individual interviews (n=18) with older adult patients (age 55+) with chronic pain at a primary care clinic in an economically and ethnically diverse community. Approximately half of patients in the clinic identify as Latino, Asian, Black, multiracial, and/or were born outside the United States. The purpose of these qualitative interviews was to understand the unique needs of diverse older adults with chronic pain in this clinic to inform the adaptation of a mind-body activity intervention, which was initially developed in a predominantly White, affluent sample. We followed the Criteria for Reporting Qualitative Research (COREQ)36 in acquiring, analyzing, and reporting on qualitative data for this study.
Participants
Clinic Staff
For the staff groups and interviews, we purposively sampled and conducted groups based on clinic role (eg, primary care physicians, nurse practitioners, administrative staff) to gather a range of staff perspectives. The medical director, administrative staff, and clinic “champions” assisted with recruitment following a similar sampling procedure in a prior treatment development study in rural and low-income settings.37 Participants did not have a prior relationship with the interviewers; however, they were made aware of the research purpose prior to participation.
Patients
We recruited older adults (55+) with chronic pain from a community health clinic using purposive sampling. Clinic champions and other clinic staff referred patients to the study. Staff who participated in the focus groups were encouraged to refer. Staff were encouraged to refer any patients with chronic pain who were 55 or older. Other participants self-referred through flyers posted in the clinic or through a clinic-wide platform for advertising research studies. The majority of patient participants were referred from providers (n=15) as opposed to flyer referrals (n=3). There were no prior relationships between the patients and the interviewers; patients were aware of the purposes of the research prior to participating. For both staff and patients, only those participating in the study were present in the qualitative assessments. Participant demographic characteristics are presented in Table 1. Patient participants were generally characteristic of those seen at the clinic, although we were unable to recruit patients from some immigrant communities due to language barriers (eg, Khmer and Arabic-speaking patients).
Table 1 Demographics for the Staff and Patient Qualitative Assessments, Mean (SD) and N (%)
Ethics Statement
The study was approved by the Massachusetts General Hospital Institutional Review Board (IRB), who determined that this qualitative study was exempt from written informed consent (protocol number: 2022P001691). The study complies with the Declaration of Helsinki guidelines for conducting research with human subjects. In accordance with IRB policies, participants reviewed a fact sheet, which included a statement that the deidentified results of the focus groups (for example, participant quotes) will be shared and published in relevant scholarly journals, and provided verbal consent to participate prior to data collection.
Procedure
We developed two semi-structured interview guides, one for staff and one for patients, using the socioecological model13–15 and prior chronic pain literature.38,39 The scripts began with general questions (eg, for patients: aspects of their personal background impact their pain), followed by questions probing at the environmental (eg, socioeconomic, employment, finances, caregiver roles), sociocultural (eg, culture, social support), behavioral (eg, behavioral changes due to pain), and medical factors (eg, managing pain and comorbidities) that impact and are impacted by pain. For the full interview guide, please see the supplemental material.
Two PhD-level clinical psychologists (female: KM, male: JG) and one master’s level research assistant trained by the clinical psychologists (one female: ME) conducted the focus groups and individual interviews either in person, using HIPAA-approved Zoom video calls, or through telephone audio calls. The PhD-level facilitators had backgrounds in chronic pain. All facilitators were cognizant of potential bias resulting from the discrepancy between their main work in an academic medical center to this community setting; probes were built into the interview guide to encourage facilitator openness to differences between the settings. One master’s level or bachelor’s level female trained research assistant (RA; ME, NL) took field notes during the interview that were then used in rapid data analysis (RDA).40 We used RDA to evaluate thematic saturation (ie, was consistent information obtained throughout assessments) in a timely manner to inform the additional qualitative assessments. RDA involved deductively mapping field notes and observations from the qualitative assessment onto a template summarizing the interview guide. RDA was conducted with the RA and the interviewer in the 24 hours after the qualitative assessment. RDA notes were consolidated into a matrix, which was consulted during the larger coding process, following established procedures.40 The matrix was created using a hybrid inductive-deductive manner by using the domains from the RDA template alongside pertinent information from the assessments. One row summarized the information reported in the present manuscript regarding the clinic population, while the other rows consisted of information related to pain treatment experiences and feedback on a proposed mind-body intervention.
The focus groups and interviews lasted between 30 and 60 minutes. Individual interviews were conducted with staff when there was a sole individual in a particular role (eg, clinic director, pain psychologist). Initially, we planned to conduct only focus groups for patient qualitative assessments but found this to be impractical due to scheduling conflicts (eg, numerous medical appointments) and other responsibilities (eg, caregiving) that made scheduling groups difficult for this patient population. We audio recorded, de-identified, and transcribed verbatim all interviews and focus groups. De-identified data was stored on a secure qualitative platform (Dedoose version 9.0.90), where it was coded. Neither data (ie, transcripts) nor results were returned to participants. There were no repeat interviews.
Data Analysis
We conducted a hybrid inductive-deductive thematic analysis of our transcripts, following the Framework Method.41 Step 1 was completed with the verbatim transcription of the interviews. Step 2 (familiarization with the qualitative data) was completed by the lead author (KM) and research assistant (NL), who conducted, reviewed transcripts, or were present for most interviews. In steps 3 (coding) and 4 (developing a working analytical framework), we (KM and JG) first developed two separate codebooks using a hybrid deductive-inductive approach. We pre-specified potential domains such as “individual factors” deductively based on the socioecological model. We used a deductive-inductive approach to specify potential parent and child codes such as “psychological factors (depression, anxiety, emotional distress)”, “resiliency factors”, or “health literacy” based on prior research in chronic pain and the socioecological model as well as information gathered from conducting the interviews and rapid data analysis.40 We allowed for themes to overlap. JG and KM met to review and integrate preliminary codes into a single codebook. Next, the larger team (AP – PhD-level male clinical psychologist, CR – PhD-level female clinical psychologist, JG, KM, and NL) each reviewed a transcript and the RDA matrix summarizing the RDA findings to inform edits to the codebook. Using this iteration of the codebook, ME and NL independently coded 20% of the transcripts. During this “first pass” of coding they continued to inductively revise parent and child codes as novel information emerged from the data (eg, merging the codes for immigration status and citizenship, addition of physical function into a code for other individual factors).
After the two RAs coded 20% of the transcripts, they then met with CR and AP to discuss novel codes that emerged during the initial coding process and to examine the concordance between the coders’ coded transcripts. To ensure strong consistency in the application of codes, the team resolved coding discrepancies via discussion informed by the codebook. The team then updated the codebook to include the new, inductively derived codes. In step 5 (applying the analytical framework), the RAs used the refined, hybrid deductive-inductive codebook to recode the 20% of transcripts they initially coded and to code the remaining 80%. CR met with the RAs regularly during the coding process to provide guidance and problem solve as needed.
In step 6 (charting data into the framework matrix), we first extracted the coded excerpts from Dedoose and compiled into an Excel document. In step 7 (interpreting the data), AP and KM then independently and systematically reviewed the excerpts by creating summary codes, which were compiled into suggested themes and subthemes. AP and KM then met to discuss the emergent patterns from the excerpts, and to finalize themes and subthemes.
Results
A summary of the findings and illustrative quotes is presented in Table 2.
Table 2 Socioecological Model Domains, Themes, and Illustrative Quotes
Individual Domain
At the individual level, we identified three themes: 1) Older adults with complex care needs. (Subthemes: 1a) Multimorbidity, 1b) Multiple life stressors, and 1c) Low health literacy); 2) Impact of pain (Subthemes: 2a) Physical functioning, 2b) Emotional functioning, 2c) Work participation and financial insecurity, 2d) Identity); and 3) Coping with pain (Subthemes 3a) Adaptive coping and 3b) Maladaptive coping).
Older Adults with Complex Care Needs
Multimorbidity
Medical staff described their older adult patients with chronic pain as often presenting with complex medical and mental health comorbidities. Older adults with chronic pain presented with a wide range of pain conditions, including arthritis, back pain, neck pain, irritable bowel syndrome, herniated discs, and neuropathy. Comorbidities included diabetes, sickle cell anemia, obesity, depression, anxiety, and bipolar disorder. Many patients reported previous falls and fear of falling again. There were also interactions between comorbidities, including an interplay between physical and mental health conditions.
Multiple Life Stressors
Staff and patients highlighted multiple stressors patients face that exacerbate pain, including financial concerns, grief, and trauma. Patients described multiple stressors co-existing and compounding each other to the extent that it was difficult to engage in stress management.
Low Health Literacy
Staff highlighted that many patients within the clinic have difficulty understanding medical concepts and had little knowledge of the medical system. They noted that some patients do not know the difference between the roles of different medical staff, and others do not have a primary care physician to help them navigate the healthcare system. Staff expressed that patients often lacked understanding of pain education and that providers struggle to have the resources in both time and training needed to address these deficits.
Impact of Pain
Patients and staff reported negative effects of pain on multiple types of functioning with interactions between physical functioning, emotional functioning, work participation and financial insecurity, and identity. Pain was noted to worsen patients’ mobility, which often led to difficulty with work, increased depression and anxiety, and feeling like they could not be the selves they once were.
Physical Functioning
Staff and patients described the patient population as one with many mobility difficulties resulting both from pain itself and fear of pain. They noted bidirectional relationships between the physical and emotional experience of pain. Some patients expressed the fear that physical movement would lead to an increase in pain, which led to greater sedentariness. Other patients described stopping activities that they used to enjoy because of the perception that the cost of completing them was too much.
Emotional Functioning
Both staff and patients discussed the negative impact of pain on emotional functioning. Patients particularly described fear of pain and increased emotional reactivity to pain, including irritability, anxiety, depression, and helplessness. For example, one patient noted the interaction between pain’s impacts on physical and emotional functioning by stating, “When you have pain, you are in such misery, you do not want to do anything.”
Work Participation and Financial Insecurity
Many patients reported that they had lost the ability to participate in work at their prior ability level due to pain; others reported being unable to work altogether and needing to rely on disability. This in turn led to feelings of financial insecurity, which interacted with impacts of pain on physical and emotional functioning.
Identity
Some patients expressed strong beliefs about the immense impact of pain on their lives across multiple domains, leading them to feel unlike the person they were before pain. Many expressed that they could not do the activities that used to be core to their sense of self and felt that they will always be limited in these ways because of their pain.
Coping with Pain
Adaptive Coping
Some patients described maintaining a resilient outlook characterized by acceptance of pain and willingness to engage in physical activity despite pain. Others reported finding creative ways to cope with pain and embracing identity changes in positive ways through the learning of new coping skills.
Maladaptive Coping
Some patients exhibited stoicism and expressed that they had been taught to push through pain, while others exhibited avoidance of activity due to fear of exacerbating pain. Additionally, staff expressed that some older adults in the clinic exhibited a maladaptive acceptance of pain, such that they did not seek treatment that could improve functioning.
Interpersonal Domain
At the interpersonal level, we identified the following themes: 1) Complex relationships with social supports and 2) Complex relationships with medical staff.
Complex Relationship with Social Supports
Both patients and staff shared that quality of social support was critical for coping with pain. Many patients perceived that social support and connection enable them to stay active despite pain, to cope emotionally with the effects of pain, and to reduce the intensity of pain. Still, others discussed their willingness to prioritize social connection despite pain. Both patients and staff also highlighted the important role that instrumental social support plays in coping with pain.
On the other hand, many discussed complexities and barriers to connecting with social supports. Many patients expressed that the pain experience is isolating, and often leads to losing social experiences and entire relationships due to mobility concerns. In addition to physical limitations, some patients described the negative impact of emotional reactivity, including irritability, shame, and guilt, on social relationships. Others noted that the experience of pain can strain their relationships, such as feeling invalidated. Both patients and staff discussed patients’ concerns about becoming a burden on their family, leading to withdrawal, so as to not ask too much of social supports.
Patients and staff also discussed that interpersonal responsibilities could lead to barriers to instrumental support, including assistance with transportation to medical appointments. Some patients, especially those from lower-income backgrounds, relied on their working children for transportation and had caregiving responsibilities that sometimes necessitated prioritizing others’ well-being over their own.
Patients and staff discussed how family dynamics can help patients cope with pain but also contribute to sedentariness over time. For example, social supports can remove the burden of physical activity away from older adult patients, but this can also decrease function long term.
Complex Relationships with Medical Staff
Patients and staff described the patient–staff relationship as being important but sometimes contentious. They described a disconnect between expectations of pain treatment from staff and patients, with patients being more solution-focused with greater expectations for pain management. Patients expressed concerns about invalidation and at times feeling misunderstood or abandoned by medical staff. Staff reported that the strongest relationships exist between patients and medical interpreters and that due to these trusting relationships, patients share more with interpreters than they do other staff.
Community Domain
At the community level, we identified two themes: 1) need for community resources and 2) need for culturally informed care.
Need for Community Resources
Nearly all patients and staff discussed a considerable need for community resources to facilitate or encourage older adults with chronic pain to walk. In particular, participants discussed the need for safe outdoor amenities and affordable indoor facilities to adapt to the local colder climate. They noted that while there were safe places to walk in the warmer months, the community lacked resources for encouraging physical activity in the colder months, especially with surfaces that were suitable for older adults with chronic pain.
Need for Culturally Informed Care
Staff discussed the need for tailored care at the clinic, including a need for chronic pain programming to be delivered in groups of older adults with similar culture and language to aid in establishing cohesion. Many shared how the large ethnolinguistic diversity of the clinic population can create challenges to providing equitable and culturally adapted pain treatment, especially given that there is no single majority ethnic population that the clinic serves.
Staff described difficulty bridging the cultural, linguistic, and generational divide between staff and patients, especially those who speak languages other than English. Staff and patients also discussed the importance of religious institutions and cultural values to some patients. They noted ways in which cultural factors impact pain treatment, including that there may be practices of families providing support at the expense of patient mobility and independence. They also discussed that a subset of the community clinic population encountered many traumas prior to emigrating to the United States, which thus requires trauma-informed care.
Societal Domain
At the societal level, we identified one theme: Socioeconomic and immigration status impacts the availability of resources for managing chronic pain.
Patients and staff reported a discrepancy between individuals with access to resources and those who depended on insufficient or unavailable government services, including foreign-born patients who lacked access to programming. Staff also noted that some patients were limited in the types of jobs they could work and were more likely to have labor jobs that increased their pain and necessitated greater demand for time-limited pain treatments. Socioeconomic status interacted with issues at other socioecological levels, including increasing stress and frustration and worsening multimorbidity, including through lack of access to healthy food.
Discussion
We conducted a qualitative analysis informed by the socioecological model of the individual, interpersonal, community, and societal factors associated with the experience of living with chronic pain as perceived by older adult patients and medical staff from an underserved community clinic. We aimed to understand the contextual factors influencing the pain experience in this population in order to inform treatment implementation. Patients and staff noted a high burden of pain on older adult patients combined with complexity in their relationships with their personal social support systems and their relationships with medical staff. Further, community resources were noted to be limited in comparison to the need for resource-intensive, culturally informed care. Societal factors, especially socioeconomic status, interacted with these factors to increase the negative impact of pain. Variability was noted as well, with some patients experiencing more resilience, support, and resources than others. There were interactions between the domains at all four levels of the socioecological model, suggesting that the standard approach for pain management to intervene only at the individual level is likely to be inadequate for patients in the community.
Regarding individual factors, staff and patients highlighted that older adults at the clinic had complex care needs, with many comorbidities and stressors. Some themes were similar to what has been reported in existing qualitative analyses of older adults with chronic pain, including the large impact of pain on functioning and sense of identity16,21 and the bidirectional relationships between physical and emotional functioning,10,28 which can create a spiral of increased disability and sedentariness over time. At the same time, staff noted greater complexity in this patient population compared to more affluent populations and a tendency for individual factors to compound each other in ways they may not for patients with greater access to resources and support. For example, staff noted that although older adult patients with chronic pain often present to the clinic with more psychiatric and medical comorbidities, they also often exhibit low health literacy that made it difficult for them to navigate the medical system to gain access to care for these conditions. Patients were also more likely to have financial stressors, including those resulting from the impact of pain on occupational functioning, which can then contribute to elevated emotional distress and worse pain.
In addition to interactions within factors at the individual level of the socioecological model, there were also interactions between individual, interpersonal, community, and societal factors. Patients and staff emphasized the importance of social support and connection to facilitate physical activity and emotional coping. Many patients noted that their support systems were crucial to living well despite pain. In contrast, many patients also endorsed feelings of isolation in association with their pain condition, including fewer social interactions and lost relationships. An individual’s emotional reactivity to pain could have strong effects on interpersonal functioning, including increased irritability, shame, and guilt, which could then worsen relationships in a bidirectional cycle. At the societal level, patients of lower SES endorsed more complex family dynamics and greater caregiving responsibilities that necessitated prioritizing others’ well-being over their own.
Across domains, an absence of resources commensurate with the needs of the population was noted. In keeping with prior qualitative research,17,23,24 staff noted being unable to meet the needs of patients’ treatment expectations with the resources at their disposal, and patients endorsed feeling at times invalidated and disconnected from their medical staff. At the community level, patients and staff noted a need for more community resources both physically and culturally, including resources to facilitate older adults’ engagement in safe physical activity. Of specific concern was a lack of indoor community spaces for exercise during the winter when the weather is unfavorable and hazardous for older adults. Further, given the ethnolinguistic diversity of the community, staff also identified a need for more programming to be delivered in patients’ languages and with staff from the same culture than was available based on existing clinic resources. At the societal level, the intersectionality between societal factors (eg, SES, immigration status) and individual factors was noted because lower SES patients can endorse greater pain severity (eg, from working labor-intensive jobs without access to options for alternative employment), more stressors and worse overall health (eg, more comorbidities, less access to healthy diet) and reduced access to resources for managing chronic pain. Foreign-born and older adult immigrant patients were found to be disadvantaged in their access to resources (eg, adult daycares) that could increase health and socialization, a key factor at the interpersonal level.
Existing pain management therapies typically intervene only at the individual level.29 Our findings suggest that the individual experience does not exist in a vacuum but rather is greatly intertwined with interpersonal, community, and societal factors. Thus, to implement evidence-based pain interventions for older adults in the community, we need to tailor them to consider all levels of the socioecological model. For example, to address the considerable multimorbidity that can result from a lifetime of higher stress and lower health literacy/access to care, it is important to include a medical check-in within the context of a pain intervention. Medical check-ins can be incorporated into shared medical visits,42 which also facilitate group cohesion to address the isolation at the interpersonal level and can reduce the need for as many trained staff that the community does not have in resource-strapped clinics.11
The present study has several limitations worth noting. In this initial qualitative analysis, we only interviewed English-speaking patients. Qualitative research targeting the needs and treatment experiences of linguistic minorities with chronic pain is needed. Additionally, while we were very successful with recruitment for the staff focus groups and interviews, recruiting patients was more difficult because of competing demands on patients’ resource-strapped time. Thus, it is likely we missed patient perspectives of those for whom life’s demands interfered, including many of the patients the staff discussed as having the most difficulty coping with chronic pain.
Conclusion
The present study provides important perspectives on the intersection between individual, interpersonal, community, and societal factors on the chronic pain experience for older adults in an underserved community clinic. Older adult patients and staff described considerable complexity among this patient population, with various stressors, comorbidities, interpersonal difficulties, and communal and societal factors impacting pain. Patients with more financial strain, less social support, more responsibilities, and cultural complexity tended to need more resources than they had available at the clinic. Older adults in underserved community clinics may be more likely to have broader community and societal factors that impact their already complex individual and interpersonal experience of their health, yet many interventions are developed to address factors at the individual level only. Our findings highlight the crucial need to develop pain management interventions to address the intersecting individual, interpersonal, community, and societal needs of older adults with chronic pain in the community.
Data Sharing Statement
Our qualitative study was not pre-registered. The analysis plan of this manuscript was not formally pre-registered. De-identified data from this study are available in the Vivli data repository. There is no analytic code associated with this qualitative study. The interview is available in the supplementary material for this manuscript.
Acknowledgments
Christine S Ritchie and Ana-Maria Vranceanu are co-senior authors for this study. This study was funded by the HEAL Initiative (https://heal.nih.gov/): Advancing Health Equity in Pain Management. We also thank those who provided meaningful contributions by way of thoughtful study participation.
Funding
This work was supported by the National Institute on Aging/National Institute of Neurological Disorders and Stroke [1R61AG08103402 to AMV and CR], the National Institute on Aging [3R61AG081034-01S1 to KM], and the National Center for Complementary and Integrative Health [K24AT011760 to AMV, K23AT012789-01 to KM, K23AT01065301A1 to JG, K23AT012363 to TP].
Disclosure
The authors report no conflicts of interest in this work.
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