Q&A: Leprosy-affected People Live Not at the Bottom, but Outside the Social Pyramid

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Health

Takahiro Nanri (left – black jacket), Executive Director of Sasakawa Memorial Health Foundation, joins hands with a leprosy survivor (right). Credit: Stella Paul/IPS

MANILA, Mar 5 2019 (IPS) – Takahiro Nanri is the Executive Director of Sasakawa Memorial Health Foundation which has been supporting the global fight against leprosy for almost five decades. Since 2014, Nanri has been leading the foundation’s leprosy projects across the world and has deep insights into the challenges faced by the people affected by leprosy as well as the organisations that work with them.


He also shares the dream of Yohei Sasakawa – the chairman of Nippon Foundation – to see a leprosy-free world and believes that despite several challenges and roadblocks, this dream is indeed possible to realise.

In an exclusive interview with IPS, Nanri talks about the idea behind the regional assembly of leprosy-affected people in Asia that was held in Manila.

He also tells how people who are affected by leprosy  are treated as social outcasts and why they must be integrated with the rest of the society. Finally, Nanri shares his views on how and why leprosy-affected people’s organisations should become sustainable.  Excerpts of the interview follow:

Takahiro Nanri is the Executive Director of the Sasakawa Memorial Health Foundation which has been supporting the global fight against leprosy for five decades. Credit: Stella Paul/IPS

Inter Press Service (IPS): Is there a reason behind Mr Sasakawa’s personal interest in leprosy? Why has the foundation continued even when it is not a big global threat anymore?

Takahiro Nanri (TN): As far as I know it was in the 1960s [when the Sasakawa family] visited leprosariums in some countries like Korea, South Korea, Nepal and at that time there was no Multidrug Therapy ( MDT) and the situation in the sanatoriums was very severe. So they had decided to fight against leprosy and launched the leprosy elimination programme and even established the Sasakawa Memorial Health Foundation.

I am very proud of the fact that this foundation has continued to work on the same issue for 50 years because, although compared to other diseases, this may have decreased, but there is still no end to leprosy.

IPS: How long have you been working on leprosy and what has been your biggest observation?

TN: I have been working on leprosy since 2014. But I have been working on poverty issues for the past 25 years. People affected by leprosy are really poor. So, working for leprosy is in a way working on poverty too.
Several years ago, there was the concept of the bottom of the pyramid; and we talked of the people living at the bottom of the pyramid and how to uplift them. We talked of using microfinance, social business approach etc. But I have realised that the people living with leprosy are actually living outside of the pyramid. That is why I feel integration is very, very important.

IPS: How did you come up with the idea of the Regional Assembly of Organisations of Leprosy- Affected People in Asia?

TN: Last September, we had a small meeting. We invited and had a discussion with some of the people’s organisations from India, Indonesia, Brazil and Ethiopia on what could be done. This September, there will be the World Congress on Leprosy where there will be academics, experts, governments. The congress is a crucial event but often organisations of the affected people are left behind. So, we came up with the idea of organising a pre-congress event where the affected people’s organisations so that it can also be a way for preparing themselves for the congress.

IPS: Why is sustainability still such a big issue for organisations of leprosy–affected people?

TN: Sustainability is not only an issue of leprosy affected people, but also for all the NGOs of the world. I don’t really have an answer here. It depends on each organisation, each leader. Every NGO, every organisation has to find its own way and its own strategy to sustain itself. Should they approach foundations, survive on external grants, seek membership fees, donations , do social business—it’s up to them. As foundations we can provide financial grant, but not forever. What we can do, however, is think together on what could be the next step.

IPS: There are many hidden cases in the world of leprosy. Can you share an example of a good action by a government that tried to act on this.

TN: In India, the government made a very brave decision. In 2016 they started a campaign to identify the endemic leprosy cases all over the country. And since then, every year, they do case detection camps. It has brought in the open many new cases that were previously hidden. It also resulted in an increase in the number of leprosy cases in the country, but after that it started to decrease as the cases were treated . So, this is an example I feel other governments can also follow.

IPS: How are you feeling now that the assembly has concluded?

TN: My expectation is very simple: this venue is for the people affected by leprosy. They should be able to discuss whatever they want to and decide whatever they want to decide.
Here, we saw is they are trying to be more pro-active, opening up,coming up with some issues, some ideas on how they can strengthen their partnership, soI am happy.

 

Healthy Oceans, Healthy Societies

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Biodiversity

Approximately three billion people around the world depend on marine and coastal biodiversity for their livelihoods as fisheries alone generates over 360 billion dollars to the global economy. However, human activity continues to threaten this crucial landscape including through overfishing. Credit: Nalisha Adams/IPS

UNITED NATIONS, Mar 5 2019 (IPS) – Over recent years, there have been shocking reports of marine endangerment and plastic pollution. The threats are clear, and now urgent action is needed more than ever.


Marking World Wildlife Day on Mar. 3 with its theme “Life below water”, the United Nations has stressed the need to promote and sustain ocean conservation not simply to protect underwater life, but also societies.

“‘Life below water’ may sound far away from our daily life; a subject best left to scientists and marine biologists; but it is anything but,” said President of the General Assembly Maria Fernanda Espinosa.

“Increasingly we are coming to understand how connected our world is and how much impact our actions are having on the oceans, on the rivers and waterways, and in turn on the wildlife, above and below water, that have come to rely on them,” she added.

Secretary-General of the Convention on International Trade in Endangered Species of Wild Fauna and Flora (CITES) Ivonne Higuero echoed similar sentiments, stating: “When we think about wildlife, most of us picture elephants, rhinos, and tigers…but we should not forget about life below water and the important contribution they make to sustainable development, as enshrined in Goal 14 of the U.N. Sustainable Development Goals.”

The oceans and its critters have been among the foundations of human societies. Approximately three billion people around the world depend on marine and coastal biodiversity for their livelihoods as fisheries alone generates over 360 billion dollars to the global economy.

More than that, oceans help regulate the climate, producing 50 percent of the world’s oxygen and absorbing 30 percent of carbon dioxide released into the atmosphere.

Yet, human activity continues to threaten this crucial landscape including through overfishing.

According to the U.N., around 30 percent of fish stocks are overexploited, often at unsustainable levels. While some policies are in place to reduce overfishing, illegal fishing is still commonplace.

Illegal and unregulated fishing constitutes an estimated 12 to 30 percent of fishing worldwide.

For instance, the high prices of caviar has fuelled illegal overfishing and near extinction of species of sturgeon and paddlefish.

The International Union for Conservation of Nature (IUCN) has listed 16 of the 27 species of sturgeon and one of the six species of paddlefish as endangered.

Espinosa particularly pointed to the issue of plastic pollution in oceans which has become a growing concern worldwide.

“Every minute a garbage truck worth of plastic makes its way to the sea. Some of this plastic remains in its original form, while much more is broken down into microplastics that are consumed by fish and other creatures, eventually finding their way into our own food, our own water,” she said.

“This is not the way we treat our home, our planet. This is not the way we maintain a sustainable and healthy ecosystem,” Espinosa added.

An estimated 5 to 12 million tonnes of plastic enter the ocean every year and many have ended up on the beaches of the world’s most isolated islands and others in the guts of whales and sea turtles.

Even in the 7-mile deep Mariana Trench, research found all specimens had plastic in their gut.

According to a report by the Ellen MacArthur Foundation, the oceans could have more plastic than fish by 2050 if current trends continue.

But through the dark clouds, there is a glimmer of hope as civil society organisations, U.N. agencies, and governments band together to protect oceans.

Launched by U.N. Environment (UNEP), the Clean Seas campaign is now the world’s largest global alliance for combating marine plastic pollution with commitments covering over 60 percent of the world’s coastlines.

The 57 countries who have joined the campaign have pledged to cut back on single-use plastics and encourage more recycling.

Already, many governments have taken up the challenge.

In December, Peru decided to phase out single-use plastic bags over the next three years.

In the U.S., cities such as Seattle and Washington, D.C. have implemented a ban on plastic straws and businesses could receive fines if they continue to offer the items.

Though this makes up only a small fraction of the marine plastic pollution issue, such low-hanging fruit seems to be the best place to start.

International non-profit organisation Global Fishing Watch has established an online platform where they record and publish data on the activity of fishing boats, providing a map of hot spots where overfishing might occur and who is responsible.

After recording data on more than 40 million hours of fishing in 2016 alone, they found that just five countries and territories including China, Spain, and Japan account for more than 85 percent of observed fishing.

The Environmental Defence Fund (EDF), on the other hand, has utilised a rights-based management approach, working directly with fishermen who receive a secure “catch share” upon complying to strict limits that allow fish populations to rebuild.

This approach has helped combat the issue of overfishing, which has dropped 60 percent since 2000 in the United States, and provides stable fishing jobs with increased revenue.

For instance, EDF worked with fishermen in the Gulf of Mexico where red snapper stocks were overexploited and continually declined. Scientists determined a sustainable threshold to catch red snapper which was then divided into shares and allocated to the fishermen.

With strict limits as to how much to fish, the red snapper population quickly flourished and by 2013, it was taken off the “avoid” list organised by the Monterey Bay Aquarium.

Higuero also highlighted the role CITES which regulates international trade in marine species, ensuring it is sustainable and legal.

“Well-managed and sustainable international trade greatly contributes to livelihoods and the conservation of marine species…we are all striving to achieve the same objective of sustainability: for people and planet – where wildlife, be it terrestrial or marine, can thrive in the wild while also benefiting people,” she said.

Secretary-General Antonio Guterres pointed to the importance of marine life for current and future societies.

“Marine species provide indispensable ecosystem services…let us raise awareness about the extraordinary diversity of marine life and the crucial importance of marine species to sustainable development.  That way, we can continue to provide these services for future generations,” he said.