The Emergence of a Global Voice for Hansen’s Disease Affected Persons

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Her experience and the chance “to help strengthen Colombia, the world, and my family” through participating in the Global Forum of People’s Organisations on Hansen’s Disease, sponsored by the Nippon Foundation and the Sasakawa Health Foundation, was like “rising from the ashes” for Lucrecia Vazques from Felehansen Colombia. Vazques’ family was hit hard by leprosy, with not only herself, but her son and one-month-old granddaughter being afflicted. Credit: Ben Kritz/IPS

MANILA, Sep 10 2019 (IPS) – The Global Forum of People’s Organisations on Hansen’s Disease, which was attended by members of people’s organisations from 23 different countries, wrapped up in Manila, Philippines, today Sept. 10 after four days of discussion and deliberation.

The main outcome was a set of recommendations, which included participants stating that those affected by the disease should have more inclusive roles in the global campaign against leprosy.

Asked to share his impressions of the forum with his fellow participants, Joshua Oraga, who is a member of ALM Kenya, a local Hansen’s disease non-profit, told the audience, “We should all familiarise ourselves with the WHO [World Health Organisation] guidelines on strengthening the participation of persons affected by leprosy in leprosy services. That should be our creed, because if you look at that document, you will see that we are the only stakeholders who have an end-to-end role.”

He said that those affected by leprosy or Hansen’s disease had a role in overcoming stigma and discrimination.

“We have a role in the promotion of equity, social justice, and human rights, we have a role in addressing gender issues, we have a role in the dissemination of information, education, communication…. We have a role in advocacy, we have a role in counselling and psychological support, we have a role in training and capacity-building, we have a role in referral services, we have a role in resource mobilisation…. So, we are everywhere!”

Oraga’s enthusiastic impressions in a way defined the outcome of the forum organised by Japan’s Sasakawa Health Foundation (SHF) and The Nippon Foundation (TNF), which support elimination of the disease globally and provide information and awareness about the disease through their dedicated website titled Leprosy Today.

The recommendations will be presented on the first day of the International Leprosy Congress (ILC), which is also being held in Manila from Sept. 11 to 13. The recommendations addressed increasing awareness of Hansen’s Disease among the public and governments, calling for greater government support for people’s organisations’ advocacies, taking a larger role in helping to form anti-leprosy policy, and working to build sustainability and more effective networks among organisations spread around the world.

A true people’s forum

To Dr. Takahiro Nanri, Executive Director of SHF, the real value of the recommendations lies not in their details, but in the manner in which they developed.

Nanri noted that the forum’s carefully-planned agenda was quickly thrown off-schedule by the spirited discussions among the participants. “The people really led the forum, and did the work they wanted to do, and I am very happy about that.”

“The recommendations were good ones, but what I think is really important is the process we saw,” he added.

Oraga was likewise pleased and motivated by his experience. Oraga, who had leprosy as a youth, said, “This is the first time I have had the opportunity to take part in a meeting at this level, so imagine my excitement and happiness to be able to come here.”

Oraga also expressed his gratitude for the work that Yohei Sasakawa, World Health Organization’s (WHO) Goodwill Ambassador for Leprosy Elimination and chairperson of TNF, has done over the last four decades. Sasakawa’s foundations have contributed over USD200 million in financial support for the WHO’s Global Leprosy programme. He also advocated for discrimination and stigmatisation against people affected by Hansen’s disease to be included in the United Nations human rights agenda. The resolution was passed in 2010.

“He has done so much for leprosy around the world, and personally I am grateful. Just think of it, because of Mr. Sasakawa, in three years, maybe leprosy will just be like any ordinary sickness,” Oraga said.

Lucrecia Vazques of Felehansen, Colombia also felt the forum was an extraordinary experience. “It’s been wonderful,” she told IPS through a Spanish translator. “It is like resuscitating after a hard moment.”

Vazques’s bubbly personality belies her own difficult experience with Hansen’s disease, which not only afflicted her, but her one-month-old granddaughter and her son, who was diagnosed first.

“It was hard,” Lucrecia said. “I had no knowledge whatsoever.We thought we would die.”

“But there was something to fight for, and to live for, and here I am. This forum means rising from the ashes. And if I had the choice, I would rise from the ashes again, and I would be right here, to help strengthen Colombia, and the world, and my family,” she said.

Looking ahead

But there is much work to still do.

“Because this was a people-led forum, it gives us direction. As you know, our resources are not limitless. We have an obligation, but it is of course better if we can maximise our efforts, and the recommendations help,” Nanri said.

Nanri reiterated the value of the “process” that he saw evolve during the forum, particularly in the context of the Joint Campaign on World Leprosy Day 2020, which will be observed on Jan. 26 next year.

“This was a step. You don’t go from the ground to the 10th floor in one jump. So now the first step has been taken. The next step is to get the groups around the world to do the activities at the same time,” which is the goal of the joint campaign. “When these recommendations are presented at the ILC, the next step can begin,” he said.

 

The Business of Social Enterprise

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Ariel Lazarte of the Coalition of Leprosy Advocates of the Philippines (CLAP) shows off the dried fish production run by patients of a transient house operated by HD (Hope & Dignity) Philippines. Courtesy: Ariel Lazarte

MANILA, Sep 8 2019 (IPS) – Organisations supporting people affected by Hansen’s disease (leprosy) have social rather than capitalist aims, but they need to take a business-minded approach to their work if they wish to be sustainable, experts at a global conference in Manila, Philippines said.


In workshops conducted at the Global Forum of People’s Organisations on Hansen’s Disease in Manila on Saturday and Sunday, Sept. 7 and 8, representatives of organisations from Asia, Africa, and Latin America agreed that sustainability is the biggest challenge they face.

Every organisation faces some uncertainty over the continuity of donor or government financial support, so reducing or eliminating reliance on external funding is considered a critical priority.

Japan’s The Nippon Foundation (TNF) and Sasakawa Health Foundation (SHF), which sponsored the global forum and provided capacity support to the participating organisations, have long taken the view that sustainability should be the ultimate goal.

At a regional conference of people’s organisations held here in March, SHF Executive Director Dr. Takahiro Nanri stressed that his foundation’s goal was to see its beneficiaries become self-supporting. “In order to be truly sustainable, the organisation needs to develop an income-generating programme,” Nanri said at the time.

Dr. Marie Lisa Dacanay president of the Institute for Social Entrepreneurship in Asia (ISEA) outlined the fundamentals of effective social enterprises, which were derived from research conducted by ISEA in India, Indonesia, Bangladesh and the Philippines. Credit: Ben Kritz/IPS

Fundamentals of social enterprises

On Sunday Sept. 8, Dr. Marie Lisa Dacanay president of the Institute for Social Entrepreneurship in Asia (ISEA) outlined the fundamentals of effective social enterprises, which were derived from research conducted by the institute in India, Indonesia, Bangladesh and the Philippines.

Social enterprises have three common traits, Dacanay explained:

  • They are driven by a social mission instead of an enterprise mission;
  • Successful social enterprises are wealth-creating organisations that provide some form of marketable products or services; and
  • They follow a distributive enterprise philosophy in that profits are directed towards the social mission rather than being collected as return on investment.

In carrying out its mission, a social enterprise faces a number of external and internal challenges, Dacanay said.

External pressures come in the form of climate or environmental factors – a significant concern of agriculture-based enterprises; unfavourable government policies; harmful industry or market practises; inadequate government support for social programs; and institutional corruption.

Internal challenges include difficulty in accessing needed technology; securing initial financing; organisational and management capacity; production efficiency; and developing practical measures of the enterprise’s social impact.

Based on ISEA’s research, successful social enterprises can be organised following an entrepreneur non-profit model, a social cooperative model, a social business model, or what she described as “social entrepreneurship intervention,” which is a hybrid combining characteristics of all three models.
In determining which form of organisation is most suitable to the social mission, Dacanay told IPS, “I think everything starts with the reality. Every social entrepreneur starts with, ‘what are the needs, and the problem?’”

“The first step is really understanding the stakeholders you want to help,” Dacanay continued, “find out what they are doing already, and look at what gaps there are. That, along with the resources and capabilities available, define a way of moving forward, and then the organisational form will follow.”

Social business is still business

In the Saturday workshop, Earl Parreno, the chairman of the Philippines’ Altertrade Foundation, Inc. (ATFI) conducted a training in business planning basics for the assembled people’s organisations.

Defining a social enterprise as one that pursues a triple bottom line philosophy (financial, social, and environmental results), Parreno explained that the fundamentals of business planning must still be applied, but that organisations that are made up of people who are both the providers and beneficiaries of a social mission are often handicapped by a complete lack of capacity.

“Poverty is not just lack of financial resources,” Parreno told the workshop participants in his presentation, “It’s really incapability, a lack of knowledge.”

Developing the capabilities can be an arduous process, but is achievable. One of ATFI’s areas of focus in the Philippines is among poor farmworkers in Negros Province, a centre for sugar production. Parreno described the success of the social enterprise supported by ATFI in marketing Muscovado sugar – semi-raw sugar that was at one time considered “poor man’s sugar,” but is now a premium-priced staple in organic food stores.

“The business ideation is really critical,” Parreno explained to IPS. “We have a saying here in the Philippines: gaya-gaya puta maya, which means something like ‘copycat.’” A common problem among new social enterprises, Parreno said, is a lack of originality in the revenue-generating product or service they wish to pursue.

“What we stress to our social enterprise partners is that they should not conceive a product or service that’s just better, but one that is truly different and has a ‘solidarity market,’” Parreno said, such as the market of “mindful consumers” for organic Muscovado sugar discovered by the Negros sugar farmers. “That solidarity market is so important. It really gives the people’s organisation a fighting chance.”

According to Parreno, developing a sound business plan, from business ideation through resource mapping, feasibility study, and market analysis answers one of the key concerns expressed by many of the forum participants in the post-workshop discussion: The difficulty in securing initial funding to launch a social enterprise.

“The only difference between this kind of (social) business and a conventional business is where the profits go,” Parreno explained. “The discipline and the steps that need to be taken to develop it are very much the same, and if the result is a good business plan, the investors to get it off the ground will follow.”

A poultry and dried fish production project located in Baras, Rizal Province, east of the Philippine capital, employs about 10 people, all residents of a transient house for leprosy patients. It is a good example of a social enterprise that has proved successful.

Ariel Lazarte, a member of Coalition of Leprosy Advocates of the Philippines (CLAP) who runs the social enterprise, told IPS that sales have been good enough that his out-of-pocket expenses have been fully covered by the revenue, as well as providing much-needed funding for the transient house residents.
The social enterprise, part of HD (Hope and Dignity) Philippines, a non-profit managed by Lazarte, makes about 560 dollars a month.

Half of this is ploughed back into the social enterprise and the remainder is used to pay for the living expenses of the patients, including paying for medicines, transport, food, water, and vitamins.
“The only outside funding we had was for [the pen for the chickens],” Lazarte told IPS, noting that the Tikkun Olam Foundation, which supports Hansen’s disease in the country, provided the funding for this.

“The residents of the house who are capable help to tend the chickens, which are layers, and produce the dried fish. We then sell the eggs and fish in the local market.”

Part of the marketing advantage the poultry project has is that the eggs are organic. “We use organic feed for the chickens,” Lazarte said. “No synthetic feed.”

 

Global Network Key to Strengthening Leprosy Organisations

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Participants at the first Global Forum of People’s Organizations on Hansen’s Disease which began on Sept. 7 in Manila, Philippines, play a game to build better connectivity among themselves. Credit: Stella Paul/IPS

MANILA, Sep 7 2019 (IPS) – Organisations of people affected by Hansen’s Disease or leprosy agree that a global network of volunteer groups is key to eradicating the disease, but concrete steps need to be taken to move the idea from an often-discussed concept to a reality.

“I don’t think anyone here is not convinced about the importance of a network,” Dr. Arturo Cunanan Medical Director of Culion Sanitarium and General Hospital told attendees following a workshop on volunteers and networking at the Global Forum of People’s Organisations on Hansen’s Disease in Manila on September 7. “But we need to put our foot forward.”

Artur Custodio Moreira de Sousa, who heads Brazil’s Movement for Reintegration of People Affected by Hansen’s Disease (MORHAN), led the workshop and firmly agreed with Cunanan’s observation, but was more upbeat.

“This forum exists because the network already exists,” Sousa said, speaking through an interpreter. “The idea exists, the network is created, the work needs to continue to solidify and formalise it.”

Sousa conducted the workshop at the forum organised by Japan’s Sasakawa Health Foundation (SHF) and The Nippon Foundation to share some ofMORHAN’s success in organising volunteers and networks in Brazil, encouraging the participating groups from Asia, Africa, and South America to consider ways in which they could contribute to an effective global network.

Making the most of volunteers

As Sousa described it, the development of a network is in a sense development of a volunteer organisation writ large. MORHAN, which was formed after the fall of Brazil’s dictatorship in 1981, is itself a network of local volunteer groups. Keeping these human resources organised and making the best use of individual talents and intentions is a significant focus area for MORHAN.

“Attracting the people (volunteers) is easy,” Sousa told the forum attendees. “Maintaining the people is very difficult.” Where MORHAN has been successful in this is by encouraging its volunteers to decide how they can contribute. “The people must be free to create,” Sousa said.

Morhan community outreach volunteer Glaucia Maricato, who was doing double duty at the forum as an English interpreter for her Portuguese-speaking colleagues, is a good example of how MORHAN uses volunteers to the best advantage for the individual and the organisation.

Maricato, an anthropologist, explained that she first was introduced to MORHAN in 2010, after the group made an agreement with a group of geneticists to reunite children who had been separated from their families due to leprosy – with either the children or the parents isolated in a sanitarium. “The idea was to use DNA testing to prove who the children’s parents were,” Maricato explained. “I was interested in the project so I got in touch with MORHAN, and then started doing fieldwork,” as the project was related to Maricato’s doctoral studies.

To Maricato, the volunteer work has far more significance than simply applying a person’s skills to a task. “MORHAN was born with democracy in Brazil [in 1981],” Maricato said. “And that spirit really carries on its work, in the DNA testing project and overall. It’s the sense of building equality, removing barriers between people.”

From local organisation to network

Organising volunteers into effective networks can greatly facilitate management of organisations and the services they provide, the chairperson of the Philippines’ Coalition of Leprosy Advocates of the Philippines (CLAP) Francisco Onde agreed.

“Our country is an archipelago, so traveling from one place to another to deal with situations is sometimes difficult,” Onde told the forum participants.

“For example, we had an issue between one of our groups and the administration of the Tala Sanitarium [located north of Manila], but we’re located in Cebu [in the central Philippines]. But through our network and our Luzon coordinator, we were able to get an attorney to assist our colleagues to resolve the problem.”

Scaling up that sort of effective communication and action to a global level is the aspiration of the people’s organisations gathered at the forum, with representatives from the various groups urging their colleagues to join the effort by applying the tools to organising volunteers discussed in the workshop. Kofi Nyarko, president of International Association for Integration, Dignity, and Economic Advancement (IDEA) Ghana stressed that the key to effective action was for people’s organisations “to first help themselves.”

“If we do this, we can do something for the public as much as the public can do something for us,” Nyarko said. “Inclusiveness is very important.”

Evidently encouraged by Cunanan’s call to not let the idea of a global network “be a talking network just within this four-cornered room,” representatives of the people’s organisations in attendance held an impromptu meeting led by Sousa and Cunanan following the workshop that ended the forum’s first day to discuss formalising efforts to create the global network, the initial details of which Cunanan told attendees he hoped would be available for presentation “at the next meeting”.

 

Festival Pays Tribute to Singer, Civil-Rights Icon Nina Simone

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LONDON, Aug 29 2019 (IPS) – It must be a daunting prospect to sing songs made famous by the incomparable Nina Simone, but performers Ledisi and Lisa Fischer brought their individual style to a BBC Proms concert in London, honouring Simone and gaining admiration for their own talent.

The show, “Mississippi Goddam: A Homage to Nina Simone”, paid tribute to the singer, pianist and civil rights campaigner – a “towering musical figure” – at the Royal Albert Hall on Aug. 21, more than 16 years after Simone died in her sleep in southern France at the age of 70.

This was a celebration to recognise her “unique contribution to music history”, according to the Proms, an annual summer festival of classical music that also features genres “outside the traditional classical repertoire”.

The concert’s title refers to the song that marked a turning point in Simone’s career, when she composed it in fury and grief following the murder of civil rights activist Medgar Evers in Jackson, Mississippi, and the deaths of four African-American girls in the bombing of the 16th Street Baptist Church in Birmingham, Alabama, in 1963.

Performing the song at the tribute, New Orleans-born vocalist Ledisi held nothing back. She put all the anger and anguish that the lyrics required into her rendition, creating one of the high points of the concert.

The composition stood out particularly because of the contrast between the lyrics and the rhythm, and Ledisi – who’s also an actress and writer – emphasized this disparity. While the “tune has an almost fun-filled, pulsating vibe” (as conductor Jules Buckley put it in his written introduction to the show), the message itself is uncompromising.

“It speaks of murder, of dashed dreams and severe inequality, and it shattered the assumption that African-Americans would patiently use the legislative process to seek political rights,” Buckley wrote. Listeners got the full context, and they were reminded that some things have not changed much in the United States.

Conducting the Metropole Orkest, whose members played superbly, Buckley said that in putting together the programme he wanted to shine a light not only on Simone’s hits but also on a “few genius and lesser-known songs”. With the sold-out concert, he and the performers succeeded in providing the audience a clear idea of the range of Simone’s oeuvre.

The concert began with an instrumental version of “African Mailman” and segued into “Sinnerman”, the soulful track about the “wrongdoer who unsuccessfully seeks shelter from a rock, the river and the sea, and ultimately makes a direct appeal to God”, to quote Alyn Shipman, the author of A New History of Jazz who compiled the programme notes.

The orchestral introduction paved the way for Lisa Fischer’s arresting entrance. With her shaved head and flowing black outfit, she moved across the stage, singing “Plain Gold Ring” in her inimitable voice, evoking the image of an operatic monk. The two-time Grammy winner displayed the genre-crossing versatility for which she has become known, using her voice like a musical instrument and hitting unexpected lows before again going high. The audience loved it.

Fischer introduced Ledisi, who wore a scarlet gown (before changing to an African dress after the intermission), and the two women then took turns singing Simone’s repertoire, expressing love for the icon as well as appreciation for each other’s performances.

They both kept topping their previous song, and the temperature rose with “I Put a Spell on You” (Ledisi), “Don’t Let Me Be Misunderstood” (Fischer), “Ne me quitte pas” (poignantly rendered by Ledisi) and “I Loves You, Porgy” (memorably delivered by Fischer).

Then there was, of course, “Mississippi Goddam”, which followed a haunting, syncopated “Dambala”, a song made famous by Bahamian musician Tony McKay aka Exuma, who inspired Simone. Fischer performed “Dambala” with the requisite mysticism, getting listeners to shake to the beat.

Back-up vocalists LaSharVu, comprising three powerhouse singers, also contributed to the energy and success of the concert. Two of them joined Ledisi and Fischer for an outstanding and moving presentation of “Four Women” – Simone’s 1966 song about the lives of four African-American women that has become an essential part of her artistic legacy.

For other songs, LaSharVu teamed up with the orchestra to provide “percussive accompaniment” through clapping, and the orchestra’s skill on moving from reggae (“Baltimore”) to gospel underpinned the overall triumph of the show.

The concert ended with an encore, as Fischer and Ledisi performed “Feeling Good” to a standing ovation, and to comments of “fantastic”, “fabulous”, “amazing” and other superlatives.

The show was not the only part of the homage to Simone. Earlier in the day, the BBC’s “Proms Plus Talk” programme had featured a discussion of the “life, work and legacy” of the singer, with poet Zena Edwards and singer-musician Ayanna Witter-Johnson interviewed by journalist Kevin Le Gendre, author of Don’t Stop The Carnival: Black Music In Britain.

During this free public event, held at Imperial College Union, the three spoke of the impact Simone has had on their work and recalled her style and performances. They also discussed the abuse she suffered from her second husband and the painful relationship she had with her only daughter, Lisa, whom Simone in turn physically abused.

Witter-Johnson said that Simone had inspired her to feel empowered in performing different genres, so that she could sing and play music across various styles. “Her courage, outstanding musicianship and love of her heritage will always be a continual source of inspiration,” she said later.

In response to a comment from an audience member, a publisher, that Simone had been an extremely “difficult” person, Edwards stressed that Simone had been a “genius” and could be expected to not have an easy personality. Le Gendre meanwhile pointed to the difficulties Simone herself had experienced, with relationships, record companies, and the American establishment, especially after she began defending civil rights.

In an email interview after the tribute, Le Gendre said Simone’s music had had a “profound effect” on him throughout his life.

“There are so many anthems that she recorded it is difficult to know where to start, but a song like ‘Four Women’ can still move me to tears because it is such an unflinchingly honest depiction of the black condition that African-Americans, African-Caribbeans and black Britons can easily relate to,” he said.

“The way she broaches the very real historical issues of rape on a plantation, girls forced into prostitution and the internal battles based on skin shade affected me a great deal because, having lived in the West Indies and the UK and visited America several times, I know that what she is talking about is simply the truth,” he added.

“There is a war within the race as well as between the races, and we will only move beyond self-destruction if we firstly recognise these painful facts. I continue to be inspired by her ability to ‘keep it real’ as well as her great musicianship. Above all else she has made me think, as well as listen and dance.”

The BBC Proms classical music festival runs until Sept. 14 at the Royal Albert Hall in London. A concert on Aug. 29 features “Duke Ellington’s Sacred Music”, with conductor Peter Edwards, pianist Monty Alexander and tap dancer Annette Walker.

(This article is published by permission of Southern World Arts News – SWAN. You can follow the writer on Twitter: @mckenzie_ale)

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Disaster Risk Resilience: Key to Protecting Vulnerable Communities

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Armida Salsiah Alisjahbana is Under-Secretary-General of the United Nations and Executive Secretary of the United Nations Economic and Social Commission for Asia and the Pacific (ESCAP).

BANGKOK, Thailand, Aug 28 2019 (IPS) – The past five years have been the hottest on record in Asia and the Pacific. Unprecedented heatwaves have swept across our region, cascading into slow onset disasters such as drought. Yet heat is only part of the picture. Tropical cyclones have struck new, unprepared parts of our region and devastatingly frequent floods have ensued. In Iran, these affected 10 million people this year and displaced 500,000 of which half were children. Bangladesh is experiencing its fourth wave of flooding in 2019. Last year, the state of Kerala in India faced the worst floods in a century.

Armida Salsiah Alisjahbana

This is the new climate reality in Asia and the Pacific. The scale of forecast economic losses for the region is sobering. Including slow-onset disasters, average annualised losses until 2030 are set to quadruple to about $675 billion compared to previous estimates. This represents 2.4 percent of the region’s GDP. Economic losses of such magnitude will undermine both economic growth and our region’s efforts to reduce poverty and inequality, keeping children out of schools and adults of work. Basic health services will be undermined, crops destroyed and food security jeopardised. If we do not act now, Asia-Pacific’s poorest communities will be among the worst affected.

Four areas of Asia and the Pacific are particularly impacted, hotspots which combine vulnerability to climate change, poverty and disaster risk. In transboundary river basins in South and South-East Asia such as the Ganges-Brahmaputra-Meghna river basin, floods alternate with prolonged droughts. In South-East Asia and East and North-East Asia earthquakes, tsunamis and landslides threaten poor populations in the Pacific Ring of Fire. Intensifying sand and dust storms are blighting East, Central and South-west Asia. Vulnerable populations in Pacific Small Islands Developing States are five times more at risk of disasters than a person in South and South-East Asia. Many countries’ sustainable development prospects are now directly dependent on their exposure to natural disasters and their ability to build resilience.

Yet this vicious cycle between poverty, inequalities and disasters is not inevitable. It can be broken if an integrated approach is taken to investing in social and disaster resilience policies. As disasters disproportionately affect the poor, building resilience must include investment in social protection as the most effective means of reducing poverty. Conditional cash transfer systems can be particularly effective as was shown in the aftermath of Typhoon Haiyan in the Philippines. Increasing pre-arranged risk finance and climate risk insurance is also crucial. While investments needed are significant, in most countries these are equivalent to less than half the costs forecast to result from natural disasters.

The use of technological innovations to protect the region from natural disasters must go hand in hand with these investments. Big data reveal patterns and associations between complex disaster risks and predict extreme weather and slow onset disasters to improve the readiness of our economies and our societies. In countries affected by typhoons, big data applications can make early warning systems stronger and can contribute to saving lives and reducing damage. China and India are leading the way in using technology to warn people of impending disasters, make their infrastructure more resilient and deliver targeted assistance to affected farmers and citizens.

Asia and the Pacific can learn from this best practice and multilateral cooperation is the way to give scale to our region’s disaster resilience effort. With this ambition in mind, representatives from countries across the region are meeting in Bangkok this week at the United Nations Economic and Social Commission for Asia and the Pacific (ESCAP) to explore regional responses to natural disasters. Their focus will include strengthening Asia-Pacific’s Disaster Resilience Network and capitalising on innovative technology applications for the benefit of the broader region. This is our opportunity to replicate successes, accelerate drought mitigation strategies and develop a regional sand and dust storm alert system. I hope the region can seize it to protect vulnerable communities from disaster risk in every corner of Asia and the Pacific.

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Is Civil Society Arguing Itself out of Political Space?

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Opinion

Felix Dodds is Adjunct Professor at the University of North Carolina and Associate fellow at the Tellus Institute

NEW YORK, Jul 29 2019 (IPS) – As some of you will know I have a new book out Stakeholder Democracy: Represented Democracy in a Time of Fear.  (other contributors to the book were:  Jan-Gustav Strandenaes, Carolina Duque Chopitea, Minu Hemmati, Susanne Salz, Bernd Lakemeier, Laura Schmitz, and Jana Borkenhagen). 

The book’s theory of change is very simple involving stakeholders in the decision making makes better-informed decisions and that those decisions are more likely to be implemented with those stakeholder’s support either singularly or in partnership.

The book places Stakeholder Democracy within the spectrum of Representative to Participatory Democracy.

It argues that we need to strengthen represented democracy in a time of fear through engaging stakeholders. It recognizes that in many places politicians are no longer believed but they need to make difficult decisions. To help them do this engaging with the support of stakeholders can help them to have the political courage to address climate change or the wave of new technologies coming or migration or the many other difficult issues we will be facing in the next ten years up to 2030.

Two discourses

Since around 1992 we have had two different political discourses in play that of stakeholders and that of civil society.

Under the leadership of Maurice Strong, Chip Lindner, and Nitin Desai the Earth Summit moved away from the old NGO discourse. This was that in the UN everyone who wasn’t a government or an intergovernmental organization was an NGO as far as the UN was concerned.

The Earth Summit changed that. Agenda 21 recognized 9 stakeholder groups in society who should be involved in policy development and in helping to deliver Agenda 21 and the Rio Conventions. These were:

  1. Women
  2. Children and Youth
  3. Indigenous Peoples
  4. Non-Governmental Organizations
  5. Local Authorities
  6. Workers and Trade Unions
  7. Business and Industry
  8. Scientific and Technological Community
  9. Farmers

By the way, these were enlarged in the development of the 2030 Agenda to include others such as older people and the disabled.

At the same time in the  World Social Summit (1995), the Financing for Development space (2002) and those around the Bretton Woods Institutions a different political discourse evolved that of civil society.

This discourse recognized only two different groups than government and intergovernmental bodies these two were industry and civil society. What did this mean?

Civil Society concept increases space for industry

We often hear in the civil society discourse of the increased space that industry has.

Well, the conceptual framework for civil society by its nature increases the space of industry from one of nine to one to two.

So let’s be clear the advocates for this by their own actions are giving up massive space for industry and reducing space for other stakeholders.

It also allows governments and intergovernmental organizations to just group anyone who isn’t industry into a catch-all group.

Who is Civil Society?

Well, there are many definitions out there and the book looks at some of them. But what it tends to be is a space dominated by NGOs…it does subjugate women, youth, community groups etc into this one space no longer having their individual and unique voices.

By doing this it dilutes the gender perspective – it reduces the voice of the next generation.

Civil Society also excludes a number of key stakeholders that includes academics and scientists, Indigenous Peoples – they are a “Peoples” and should, of course, have not to be subjugated to other views.

It excludes local and subnational government who is seen as a level of government but whose voices freedom found with their national government.

The book goes into examples where this course has resulted in the wrong people being at the table.

The Stakeholder discourse, on the other hand, requires an ongoing stakeholder mapping process to ensure the right people are at the table.

It gives them individual space to articulate for a gender perspective or youth a next-generation perspective. It enables new relevant stakeholders that have emerged over the last 25 years to be recognized and given space such as older people or people with disabilities.

Civil Society discourse is a lazy discourse

What amazes me is how groups that do not benefit from the civil society discourse seem to accept it without question.

I can only think it is because its easier than to argue for the individual voice of relevant stakeholders.

For governments and intergovernmental organizations, it makes their life much easier.

They don’t have to show what they are doing for engaging each of the stakeholders they leave it to a broad engagement with this catch-all group of civil society.

What it has done in many UN bodies that have adopted this reduces the staff support for stakeholders and increase it for industry – a good example of this is UNEP.

After all, now intergovernmental bodies would only be servicing two groups… resulting in the need for only a form of parity between civil society support and industry. Previously there needed to be evidence of support for women, youth, Indigenous Peoples etc.

You can hear from some of those lazy people the comments like…

“ahh how do you decide which stakeholder group you should be a member of”
”
They go on to say “what if you are a woman and a young person and work for an NGO.

Well, the engagement isn’t and shouldn’t be based on the individual it’s based on the organization in all cases. To be clear it should be based on what the organization’s policy priorities are. If the organization is focused on youth policies then it should engage with the youth caucus, if its work is gender then it should engage with the women’s stakeholder group and if it’s a mixture well work in a number of different stakeholder groups.

Who benefits from the Civil Society discourse?

I always like to look at who benefits to see if that has a bearing.

It’s clear that there is a number that benefit.

Governments and Intergovernmental organizations benefit as they don’t have to address the different voices and leave that coordination to whoever is organizing the civil society group.

Industry benefits as they gain a huge additional space vacated by key stakeholders one of 2 is so much better than one of 9 or more for them.

Also, large well organized northern-based NGOs benefit as they can assert a larger influence on one space than many.

So if you are happy with giving more space to industry, reducing space for women and youth and other key stakeholders, not recognizing Indigenous Peoples right for their own space, do not want academics and scientists to be able to represent their research then do continue to use the civil society concept but understand what you are doing.

You are actively taking part in reducing space for all other stakeholders.